{"id":2986,"date":"2026-03-19T11:03:10","date_gmt":"2026-03-19T11:03:10","guid":{"rendered":"https:\/\/kristianhulala.sk\/about-me-in-the-media-novy-cas-article\/"},"modified":"2026-03-28T15:08:34","modified_gmt":"2026-03-28T15:08:34","slug":"about-me-in-the-media-novy-cas-article","status":"publish","type":"page","link":"https:\/\/kristianhulala.sk\/en\/about-me-in-the-media-novy-cas-article\/","title":{"rendered":"About Me in the Media – Nov\u00fd \u010das Article"},"content":{"rendered":"

Kristi\u00e1n Lives in Pain from Which There Is No Escape<\/p><\/h1><\/div>

\n

Nov\u00fd \u010cas newspaper about my story<\/h3>\n

The Slovak daily newspaper Nov\u00fd \u010cas<\/strong> also wrote about my life with Epidermolysis Bullosa (butterfly skin disease)<\/strong>. The article describes my daily life and the reality of living with this rare condition.<\/p>\n

The article was published in the regional supplement of the newspaper in 2019. It describes my daily life with this rare genetic condition that significantly affects every day. <\/p>\n

Epidermolysis Bullosa is among very rare genetic conditions. Patients’ skin is extremely fragile and can be damaged by even slight pressure or friction. People with this condition must treat wounds daily and take great care to avoid skin injuries. <\/p>\n

The article in Nov\u00fd \u010cas newspaper highlights these very issues and also describes wound care, medical complications, and the support of my family, who help me manage daily life.<\/p>\n

\u201cKristi\u00e1n Lives in Pain from Which There Is No Escape: A Rare Disease Took His Body\u201d<\/h3>\n

You can read the full article here:
\nNov\u00fd \u010cas<\/a>\n<\/p>\n

If you want to know more about what life with Epidermolysis Bullosa looks like, read my personal story as well.<\/p>\n<\/div>\n<\/div>

If you want to see what everyday life with this condition looks like, you can also read my personal story:<\/p>\n

What it\u2019s like living with Epidermolysis Bullosa<\/strong><\/a><\/p>\n

Article about Epidermolysis Bullosa in Nov\u00fd \u010cas daily<\/h3>\n<\/div>
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