{"id":3161,"date":"2026-03-19T11:13:02","date_gmt":"2026-03-19T11:13:02","guid":{"rendered":"https:\/\/kristianhulala.sk\/what-my-typical-day-with-eb-looks-like\/"},"modified":"2026-10-22T08:56:11","modified_gmt":"2026-10-22T06:56:11","slug":"what-my-typical-day-with-eb-looks-like","status":"publish","type":"page","link":"https:\/\/kristianhulala.sk\/en\/what-my-typical-day-with-eb-looks-like\/","title":{"rendered":"What my typical day with EB looks like"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container has-pattern-background has-mask-background nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1331.2px;margin-left: 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7px!important}}<\/style>\n<style>body.page-id-2792 #content{color:#323c72;font-family:Arial,sans-serif;font-size:17px;line-height:1.8}body.page-id-2792 #content .fusion-text p{margin:0 0 20px}body.page-id-2792 #content h2{font:700 24px\/1.35 Arial,sans-serif!important;color:#11145b!important;margin:30px 0 16px!important;scroll-margin-top:95px}body.page-id-2792 #content .fusion-title{clear:both}body.page-id-2792 #content img{max-width:100%;height:auto;border-radius:14px}body.page-id-2792 #content img.alignright{max-width:44%;margin:4px 0 20px 24px}body.page-id-2792 #content img.alignleft{max-width:44%;margin:4px 24px 20px 0}body.page-id-2792 #content a{color:#5746ff}body.page-id-2792 .kh-eb-toc{background:#f7f5ff;border:1px solid #e9e4ff;border-radius:14px;padding:20px;margin:24px 0}body.page-id-2792 .kh-eb-toc ul{display:grid;grid-template-columns:1fr 1fr;gap:6px 24px;padding-left:20px;margin:10px 0 0}body.page-id-2792 #sidebar #custom_html-6{display:none!important}@media(max-width:600px){body.page-id-2792 #content{font-size:16px}body.page-id-2792 #content h2{font-size:22px!important}body.page-id-2792 #content img.alignleft,body.page-id-2792 #content img.alignright{float:none!important;display:block;max-width:100%;margin:16px auto}body.page-id-2792 .kh-eb-toc ul{grid-template-columns:1fr}}<\/style>\n<\/div><div class=\"fusion-title title fusion-title-1 fusion-sep-none fusion-title-text fusion-title-size-one\" style=\"--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\"><h1 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">My Typical Day with Epidermolysis Bullosa (EB)<\/h1><\/div><div class=\"fusion-text fusion-text-2\"><p>This article describes my typical day with Epidermolysis Bullosa and daily life with this condition.<\/p>\n<p>Every day with Epidermolysis Bullosa (EB) has its own rhythm. A large part of the day involves wound care and rest, but I try to include everyday activities that bring me joy. <\/p>\n<nav class=\"kh-eb-toc\" aria-label=\"Obsah \u010dl\u00e1nku\"><strong>In this article<\/strong><\/p>\n<ul>\n<li><a href=\"#den-sekcia-1\">Morning after wound care<\/a><\/li>\n<li><a href=\"#den-sekcia-2\">Rest and family time<\/a><\/li>\n<li><a href=\"#den-sekcia-3\">Afternoon routine<\/a><\/li>\n<li><a href=\"#den-sekcia-4\">Caring for the dogs and the evening<\/a><\/li>\n<li><a href=\"#den-sekcia-5\">Evening and sleep<\/a><\/li>\n<li><a href=\"#den-sekcia-6\">Sleep and pain<\/a><\/li>\n<\/ul>\n<\/nav>\n<\/div><div class=\"fusion-title title fusion-title-2 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\" id=\"den-sekcia-1\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Morning after wound care<\/h2><\/div><div class=\"fusion-text fusion-text-3\"><p>After my morning care routine, I call my dogs and sit down at the computer. The younger dog is full of energy in the morning, running around with toys and wanting to play. The older dog is calmer, sits next to me and relaxes.  <\/p>\n<p>My mom prepares breakfast and brings it to me at the computer. While eating, I read news from the world of technology and various interesting facts.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-3 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\" id=\"den-sekcia-2\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Rest and family time<\/h2><\/div><div class=\"fusion-text fusion-text-4\"><p>After breakfast, I often go lie down for a while for 20 to 30 minutes and cuddle with the dogs. Then I sit back down at the computer. <\/p>\n<p>Mom starts preparing lunch around 11:30 AM. The eating itself takes me about half an hour to an hour. After lunch, I take the vitamins and medications that my mom prepared for me in the morning.  <\/p>\n<p>Then I go to rest in bed. Mom covers me with a blanket and the dogs are with me. I rest or read various interesting things on my phone or tablet.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-4 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\" id=\"den-sekcia-3\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Afternoon routine<\/h2><\/div><div class=\"fusion-text fusion-text-5\"><p>At 2:45 PM I drink Ensure Plus Advance. Then I either sit down at the computer or rest a bit longer. <\/p>\n<p>Sometimes I go to the kitchen to be with Mom. On weekends, when Dad is home too, we spend time together and talk.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-5 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\" id=\"den-sekcia-4\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Caring for the dogs and the evening<\/h2><\/div><div class=\"fusion-text fusion-text-6\"><p>At 4:30 PM, mom feeds the dogs. When they finish eating, I give them biscuits and a dental stick. <\/p>\n<p>At 5:00 PM, I take my evening pill and mom prepares dinner. I eat dinner slowly at the computer so that I don&#8217;t choke. <\/p>\n<p>Every evening around 6:30 PM, I put on a movie. It&#8217;s a time I always look forward to.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-6 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\" id=\"den-sekcia-5\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Evening and sleep<\/h2><\/div><div class=\"fusion-text fusion-text-7\"><p>At 8:45 PM I drink my second Ensure Plus Advance, which I drink slowly over 15 to 20 minutes so I don&#8217;t overload my stomach.<\/p>\n<p>I go to bed at approximately 9:20 PM. Mom checks my wounds and dressings, helps me put on my pajamas, and covers me up. <\/p>\n<p>I think for a while in bed and then fall asleep.<\/p>\n<\/div><div class=\"fusion-title title fusion-title-7 fusion-sep-none fusion-title-text fusion-title-size-two\" style=\"--awb-margin-top-small:10px;--awb-margin-right-small:0px;--awb-margin-bottom-small:10px;--awb-margin-left-small:0px;\" id=\"den-sekcia-6\"><h2 class=\"fusion-title-heading title-heading-left\" style=\"margin:0;\">Sleep and pain<\/h2><\/div><div class=\"fusion-text fusion-text-8\"><p>My sleep varies. Sometimes I sleep well, but there are also nights when my wounds hurt, most often on my legs. <\/p>\n<p>At those times, I can&#8217;t find a comfortable position and falling asleep is more difficult.<\/p>\n<p>Every day with EB is different, but my <strong>typical day with Epidermolysis Bullosa<\/strong> has its own rhythm.<\/p>\n<p>You can find more about wound care on the page <a href=\"https:\/\/kristianhulala.sk\/en\/how-i-treat-wounds-with-eb\/\" target=\"_blank\" rel=\"noopener\">How I Care for Wounds with Epidermolysis Bullosa<\/a>.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3161","page","type-page","status-publish","hentry"],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.8 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>A Typical Day with Epidermolysis Bullosa \u2013 What My Life Looks Like (EB)<\/title>\n<meta name=\"description\" content=\"What does a typical day with Epidermolysis Bullosa look like? 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