{"id":3165,"date":"2026-03-19T11:13:04","date_gmt":"2026-03-19T11:13:04","guid":{"rendered":"https:\/\/kristianhulala.sk\/kako-izgleda-moj-uobicajeni-dan-s-eb\/"},"modified":"2026-03-28T15:10:16","modified_gmt":"2026-03-28T15:10:16","slug":"kako-izgleda-moj-uobicajeni-dan-s-eb","status":"publish","type":"page","link":"https:\/\/kristianhulala.sk\/hr\/kako-izgleda-moj-uobicajeni-dan-s-eb\/","title":{"rendered":"Kako izgleda moj uobi\u010dajeni dan s EB"},"content":{"rendered":"

Moj uobi\u010dajen dan s Epidermolysis Bullosa (EB)<\/h1><\/div>

Ovaj \u010dlanak opisuje moj uobi\u010dajeni dan s Epidermolysis Bullosa i svakodnevni \u017eivot s ovom bole\u0161\u0107u.<\/p>\n

Svaki dan s bole\u0161\u0107u Epidermolysis Bullosa (EB) ima svoj vlastiti ritam. Velik dio dana \u010dine previjanje rana i odmor, ali nastojim u svakodnevni \u017eivot uklju\u010diti i uobi\u010dajene aktivnosti koje me vesele. <\/p>\n

Jutro nakon njege<\/h3>\n

Nakon jutarnjeg previjanja pozovem svoje psi\u0107e i odem sjesti za ra\u010dunalo. Mla\u0111i psi\u0107 je od jutra pun energije, tr\u010di s igra\u010dkama i \u017eeli se igrati. Stariji psi\u0107 je mirniji, sjedne kraj mene i odmara. <\/p>\n

Mama mi pripremi doru\u010dak i donese mi ga do ra\u010dunala. Dok jedem, \u010ditam novosti iz svijeta tehnologije i razne zanimljivosti. <\/p>\n

Odmor i vrijeme s obitelji<\/h3>\n

Nakon doru\u010dka \u010desto odem na kratko le\u0107i na 20 do 30 minuta i mazim se sa psi\u0107ima. Zatim ponovno sjednem za ra\u010dunalo. <\/p>\n

Mama po\u010dinje pripremati ru\u010dak oko 11:30. Samo jelo mi traje otprilike pola sata do sat vremena. Nakon ru\u010dka uzmem vitamine i lijekove koje mi je mama pripremila ve\u0107 ujutro. <\/p>\n

Zatim odem odmoriti u krevet. Mama me pokrije dekom, a psi\u0107i su uz mene. Odmaram se ili na mobitelu ili tabletu \u010ditam razne zanimljivosti. <\/p>\n

Poslijepodnevna rutina<\/h3>\n

U 14:45 popijem Ensure Plus Advance. Zatim ili sjednem za ra\u010dunalo ili se jo\u0161 malo odmorim. <\/p>\n

Ponekad odem u kuhinju k mami. Tijekom vikenda, kada je i tata kod ku\u0107e, provodimo vrijeme zajedno i razgovaramo. <\/p>\n

Briga o psi\u0107ima i ve\u010der<\/h3>\n

U 16:30 mama nahrani psi\u0107e. Kad pojedu, dajem im pi\u0161kote i \u0161tapi\u0107 za \u010di\u0161\u0107enje zubi. <\/p>\n

U 17:00 uzmem ve\u010dernju tabletu, a mama mi pripremi ve\u010deru. Ve\u010deram polako za ra\u010dunalom kako mi ne bi zalogaj \u201epo\u0161ao u krivo\u201c. <\/p>\n

Oko 18:30 svake ve\u010deri pustim film. To je vrijeme kojem se uvijek veselim. <\/p>\n

Ve\u010der i spavanje<\/h3>\n

U 20:45 popijem drugi Ensure Plus Advance, koji pijem polako 15 do 20 minuta, kako ne bih opteretio \u017eeludac.<\/p>\n

U krevet idem otprilike u 21:20. Mama mi provjeri rane i obloge, pomogne mi obu\u0107i pid\u017eamu i pokrije me. <\/p>\n

U krevetu jo\u0161 malo razmi\u0161ljam, a zatim zaspim.<\/p>\n

Spavanje i bol<\/h3>\n

Moj san je razli\u010dit. Ponekad spavam dobro, ali ima i no\u0107i kada me bole rane, naj\u010de\u0161\u0107e na nogama. <\/p>\n

Tada ne mogu prona\u0107i udoban polo\u017eaj i uspavljivanje je te\u017ee.<\/p>\n

Svaki dan s EB-om je druga\u010diji, ali moj uobi\u010dajeni dan s Epidermolysis Bullosa<\/strong> ima svoj ritam.<\/p>\n

Vi\u0161e o previjanju rana mo\u017eete prona\u0107i na stranici Kako previjam rane kod Epidermolysis Bullosa<\/a>.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3165","page","type-page","status-publish","hentry"],"yoast_head":"\nUobi\u010dajen dan s Epidermolysis Bullosa \u2013 kako izgleda moj \u017eivot (EB)<\/title>\n<meta name=\"description\" content=\"Kako izgleda uobi\u010dajen dan s Epidermolysis Bullosa? 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