{"id":2911,"date":"2026-03-18T15:34:03","date_gmt":"2026-03-18T15:34:03","guid":{"rendered":"https:\/\/kristianhulala.sk\/kristian-es-az-elet-epidermolysis-bullosaval\/"},"modified":"2026-10-22T09:06:33","modified_gmt":"2026-10-22T07:06:33","slug":"kristian-es-az-elet-epidermolysis-bullosaval","status":"publish","type":"page","link":"https:\/\/kristianhulala.sk\/hu\/","title":{"rendered":"Kristi\u00e1n \u00e9s az \u00e9let Epidermolysis Bullos\u00e1val"},"content":{"rendered":"<div class=\"fusion-fullwidth fullwidth-box fusion-builder-row-1 fusion-flex-container nonhundred-percent-fullwidth non-hundred-percent-height-scrolling\" style=\"--awb-border-radius-top-left:0px;--awb-border-radius-top-right:0px;--awb-border-radius-bottom-right:0px;--awb-border-radius-bottom-left:0px;--awb-flex-wrap:wrap;\" ><div class=\"fusion-builder-row fusion-row fusion-flex-align-items-flex-start fusion-flex-content-wrap\" style=\"max-width:1331.2px;margin-left: calc(-4% \/ 2 );margin-right: calc(-4% \/ 2 );\"><div class=\"fusion-layout-column fusion_builder_column fusion-builder-column-0 fusion_builder_column_1_1 1_1 fusion-flex-column\" style=\"--awb-bg-size:cover;--awb-width-large:100%;--awb-margin-top-large:0px;--awb-spacing-right-large:1.92%;--awb-margin-bottom-large:20px;--awb-spacing-left-large:1.92%;--awb-width-medium:100%;--awb-order-medium:0;--awb-spacing-right-medium:1.92%;--awb-spacing-left-medium:1.92%;--awb-width-small:100%;--awb-order-small:0;--awb-spacing-right-small:1.92%;--awb-spacing-left-small:1.92%;\"><div class=\"fusion-column-wrapper fusion-column-has-shadow fusion-flex-justify-content-flex-start fusion-content-layout-column\"><div class=\"fusion-text fusion-text-1\"><style>.kh-hero{position:relative;overflow:hidden;border-radius:20px;min-height:440px;margin:0 0 24px;background:#f3f2ff;display:flex;align-items:center}.kh-hero-photo{position:absolute;inset:0;width:100%;height:100%;object-fit:cover;object-position:64% calc(58% - 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Napriek v\u00fdzvam sa sna\u017e\u00edm \u017ei\u0165 naplno a zdie\u013ea\u0165 svoje sk\u00fasenosti, poznatky a technol\u00f3gie, ktor\u00e9 mi u\u013eah\u010duj\u00fa \u017eivot.<\/p>\n<div class=\"kh-hero-actions\"><a href=\"https:\/\/kristianhulala.sk\/hu\/rolam\/\">Viac o mne<\/a><a href=\"https:\/\/kristianhulala.sk\/hu\/kapcsolat\/\">Kontakt<\/a><\/div>\n<\/div>\n<\/section>\n<style>body.home .kh-topic-photo{display:block;width:100%;height:120px;object-fit:cover;object-position:center 42%;border-radius:10px;margin:10px 0 2px;background:#f3f1ff}@media(max-width:600px){body.home .kh-topic-photo{height:180px}}<\/style>\n<style>body.home .kh-topic-portrait{object-position:center 40%}body.home .kh-topic-walk{object-position:56% 26%}<\/style>\n<\/div><div class=\"fusion-text fusion-text-2\"><style>.kh-life{background:#fff;border:1px solid #eeecff;border-radius:20px;padding:28px;margin:0 0 28px;box-shadow:0 6px 24px #5146ff0a;color:#11145b}.kh-life h2{font-size:30px!important;line-height:1.2!important;color:#10115b!important;margin:0 0 10px!important}.kh-life-intro{margin-bottom:24px!important;color:#414575}.kh-topics{display:grid;grid-template-columns:repeat(4,minmax(0,1fr));gap:0}.kh-topic{padding:10px 20px;border-right:1px solid #eeecff}.kh-topic:first-child{padding-left:0}.kh-topic:last-child{border:0;padding-right:0}.kh-topic h3{font-size:18px!important;color:#10115b!important;margin:0 0 12px!important}.kh-topic p{font-size:15px;line-height:1.65;margin:0 0 18px}.kh-topic a{color:#5546ff!important;font-weight:600}.kh-topic-icon{display:inline-flex;width:34px;height:34px;align-items:center;justify-content:center;border-radius:10px;background:#f0edff;color:#5546ff;margin-bottom:12px;font-size:25px}.kh-topic a:focus-visible{outline:3px solid #5546ff;outline-offset:4px}@media(max-width:1000px){.kh-topics{grid-template-columns:repeat(2,minmax(0,1fr))}.kh-topic{padding:15px!important}.kh-topic:nth-child(2){border:0}}@media(max-width:600px){.kh-life{padding:22px}.kh-topics{grid-template-columns:1fr}.kh-topic{border-right:0;border-bottom:1px solid #eeecff;padding:20px 0!important}.kh-life h2{font-size:26px!important}}<\/style>\n<section class=\"kh-life\" aria-labelledby=\"kh-life-heading\">\n<h3  id=\"kh-life-heading\">\u00c9letem \u00e9s eg\u00e9szs\u00e9gem<\/h3>\n<p class=\"kh-life-intro\">Az \u00e9letem EB-vel, mindennapi \u00e1pol\u00e1s, eg\u00e9szs\u00e9g \u00e9s minden, ami seg\u00edt nekem.<\/p>\n<div class=\"kh-topics\">\n<blockquote class=\"kh-topic kh-motto\">\n<p><span class=\"kh-topic-icon\" aria-hidden=\"true\">\u201e<\/span><\/p>\n<p>Soha nem adom fel.<br \/>Megold\u00e1sokat keresek,<br \/>nem kifog\u00e1sokat.<\/p>\n<p><cite>\u2013 Kristi\u00e1n Hulala<\/cite><\/p>\n<\/blockquote>\n<div class=\"kh-topic\"><span class=\"kh-topic-icon\" aria-hidden=\"true\">\u2659<\/span><img class=\"kh-topic-photo kh-topic-portrait\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/10\/IMG_20260608_134533-scaled.jpg\" alt=\"Kristi\u00e1n Hulala a teraszon\" width=\"1920\" height=\"2560\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >R\u00f3lam<\/h3>\n<p>A t\u00f6rt\u00e9netem, a tapasztalataim \u00e9s az, ami minden nap motiv\u00e1l.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/rolam\/\">Tudjon meg t\u00f6bbet <span aria-hidden=\"true\">\u2192<\/span><span class=\"screen-reader-text\">: R\u00f3lam<\/span><\/a><\/div>\n<div class=\"kh-topic\"><span class=\"kh-topic-icon\" aria-hidden=\"true\">\u2661<\/span><img class=\"kh-topic-photo kh-topic-walk\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/10\/IMG_20241205_150024x-scaled.jpg\" alt=\"Kristi\u00e1n egy t\u00e9li s\u00e9t\u00e1n elektromos kerekessz\u00e9kben\" width=\"1920\" height=\"1440\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >\u00c9let EB-vel<\/h3>\n<p>Az epidermolysis bullos\u00e1val val\u00f3 mindennapi \u00e9let val\u00f3s\u00e1ga.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/hogyan-elunk-az-epidermolysis-bullosaval\/\">Tudjon meg t\u00f6bbet <span aria-hidden=\"true\">\u2192<\/span><span class=\"screen-reader-text\">: \u00c9let EB-vel<\/span><\/a><\/div>\n<div class=\"kh-topic\"><span class=\"kh-topic-icon\" aria-hidden=\"true\">\u271a<\/span><img class=\"kh-topic-photo\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/03\/zdravotnicky-material.jpg\" alt=\"Mepilex k\u00f6tszerek, g\u00e9z \u00e9s p\u00f3ly\u00e1k a mindennapi sebkezel\u00e9shez\" width=\"1920\" height=\"1440\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >Az eg\u00e9szs\u00e9gem<\/h3>\n<p>Eg\u00e9szs\u00e9g\u00fcgyi anyagok, gy\u00f3gyszerek, vitaminok \u00e9s tippek, amelyek seg\u00edtenek nekem.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/egeszseg\/\">Tudjon meg t\u00f6bbet <span aria-hidden=\"true\">\u2192<\/span><span class=\"screen-reader-text\">: Az eg\u00e9szs\u00e9gem<\/span><\/a><\/div>\n<\/div>\n<\/section>\n<style>body.home .fusion-logo{display:none!important}body.home .fusion-header{padding-top:0!important;padding-bottom:0!important;min-height:0!important}body.home .fusion-main-menu>ul{display:flex!important;justify-content:center;gap:8px;flex-wrap:wrap}body.home .fusion-main-menu>ul>li{float:none!important}body.home .fusion-main-menu>ul>li>a{background:transparent!important;color:#151654!important;font-size:16px!important;height:52px!important;border:0!important;padding:0 18px!important}body.home .fusion-main-menu>ul>li>a:hover,body.home .fusion-main-menu>ul>li>a:focus-visible{color:#5546ff!important;background:#f4f2ff!important;border-radius:10px}body.home .kh-life,body.home .kh-articles,body.home 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(max-width:1150px){body.home .fusion-header{flex-basis:210px}body.home .fusion-main-menu>ul>li>a{font-size:13px!important;padding:0 7px!important}}<\/style>\n<style>body.home .kh-tech{display:grid!important;grid-template-columns:180px minmax(0,1fr) 90px!important;align-items:center;gap:24px!important}body.home .kh-tech>p:empty{display:none!important}body.home .kh-tech>p:last-child{margin:0!important;align-self:stretch}body.home .kh-tech-copy{width:auto!important;min-width:0}body.home .kh-tech-copy h2 a{color:inherit!important;text-decoration:none}body.home .kh-tech-butterfly{display:grid;place-items:center;align-self:stretch;border-radius:14px;background:radial-gradient(ellipse,#dfdcff,transparent 75%);font-size:64px;filter:hue-rotate(180deg)}body.home .kh-tech-photo{width:180px!important;height:150px!important;object-fit:cover}body.home .kh-tech-links{margin-top:12px!important}@media(max-width:700px){body.home .kh-tech{grid-template-columns:1fr!important;gap:16px!important}body.home .kh-tech-photo{width:100%!important;height:180px!important}body.home .kh-tech-butterfly,body.home .kh-tech>p:last-child{display:none!important}}<\/style>\n<div class=\"kh-articles\" aria-label=\"\u010cl\u00e1nky o mojom \u017eivote a zdrav\u00ed\">\n<article class=\"kh-article\"><img class=\"kh-article-photo\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/10\/SDC10017-scaled.jpg\" alt=\"Kristi\u00e1n k\u00e9k kock\u00e1s ingben az udvaron\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >Milyen az \u00e9let EB-vel<\/h3>\n<p>A mindennapi \u00e9let val\u00f3s\u00e1ga, kih\u00edv\u00e1sai \u00e9s tapasztalatai.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/hogyan-elunk-az-epidermolysis-bullosaval\/\">Tudjon meg t\u00f6bbet \u2192<span class=\"screen-reader-text\"> Hogyan lehet EB-vel \u00e9lni<\/span><\/a><\/article>\n<article class=\"kh-article\"><img class=\"kh-article-photo\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/10\/skola-2.jpg\" alt=\"Kristi\u00e1n az iskola\u00e9vei alatt az \u00edr\u00f3asztaln\u00e1l\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >Egy EB-s iskol\u00e1s \u00e9lete<\/h3>\n<p>Iskola, tanul\u00e1s, seg\u00e9deszk\u00f6z\u00f6k \u00e9s a tapasztalataim.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/egy-eb-s-iskolas-elete\/\">Tudjon meg t\u00f6bbet \u2192<span class=\"screen-reader-text\"> Egy iskol\u00e1s \u00e9lete EB-vel<\/span><\/a><\/article>\n<article class=\"kh-article\"><img class=\"kh-article-photo\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/03\/mepilex-ag.jpg\" alt=\"Mepilex Ag sebk\u00f6t\u00f6z\u0151\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >Hogyan kezelem a sebeimet EB eset\u00e9n<\/h3>\n<p>Elj\u00e1r\u00e1sok, seg\u00e9deszk\u00f6z\u00f6k \u00e9s tippek, amelyek seg\u00edtenek nekem.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/hogyan-kezelem-a-sebeimet-eb-eseten\/\">Tudjon meg t\u00f6bbet \u2192<span class=\"screen-reader-text\"> Hogyan kezelem a sebeimet EB eset\u00e9n<\/span><\/a><\/article>\n<article class=\"kh-article\"><img class=\"kh-article-photo\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/03\/zdravotnicky-material.jpg\" alt=\"Mepilex k\u00f6tszerek, g\u00e9z \u00e9s p\u00f3ly\u00e1k, amelyeket a sebkezel\u00e9shez haszn\u00e1lok\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >Orvosi seg\u00e9deszk\u00f6z\u00f6k<\/h3>\n<p>Anyagok, amelyeket a mindennapi \u00e1pol\u00e1s sor\u00e1n haszn\u00e1lok.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/orvosi-segedeszkozok-amiket-eb-eseten-hasznalok\/\">Tudjon meg t\u00f6bbet \u2192<span class=\"screen-reader-text\"> Eg\u00e9szs\u00e9g\u00fcgyi anyagok<\/span><\/a><\/article>\n<article class=\"kh-article\"><img class=\"kh-article-photo\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/03\/vitmin-c-d-psyllium-collalloc.jpg\" alt=\"Vitaminok \u00e9s \u00e9trend-kieg\u00e9sz\u00edt\u0151k, amelyeket szedek\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >Gy\u00f3gyszerek \u00e9s vitaminok<\/h3>\n<p>Mit szedek, \u00e9s mi seg\u00edt nekem EB eset\u00e9n.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/gyogyszerek-es-vitaminok-amelyeket-eb-eseten-szedek\/\">Tudjon meg t\u00f6bbet \u2192<span class=\"screen-reader-text\"> Gy\u00f3gyszerek \u00e9s vitaminok<\/span><\/a><\/article>\n<article class=\"kh-article\"><img class=\"kh-article-photo\" src=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/10\/Untitled-1000.jpg\" alt=\"Kristi\u00e1n otthon a sz\u00e1m\u00edt\u00f3g\u00e9p\u00e9n\u00e9l\" loading=\"lazy\" decoding=\"async\"><\/p>\n<h3 >Hogyan n\u00e9z ki egy \u00e1tlagos napom<\/h3>\n<p>Mindennapi \u00e1pol\u00e1s \u00e9s dolgok, amelyek \u00f6r\u00f6met okoznak.<\/p>\n<p><a href=\"https:\/\/kristianhulala.sk\/hu\/hogyan-nez-ki-egy-atlagos-napom-eb-vel\/\">Tudjon meg t\u00f6bbet \u2192<span class=\"screen-reader-text\"> Hogyan n\u00e9z ki egy \u00e1tlagos napom<\/span><\/a><\/article>\n<\/div>\n<style>body.home .kh-tech.kh-tech-banner{grid-template-columns:190px minmax(0,1fr) 190px!important;gap:16px!important;padding:12px!important;background:#fff;overflow:hidden}body.home .kh-tech-banner .kh-banner-art{width:190px;height:110px;border-radius:12px;background-image:url(\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2026\/10\/Untitled-1.png\");background-repeat:no-repeat;background-size:726.27px 110px}body.home .kh-tech-banner .kh-banner-laptop{background-position:left center}body.home .kh-tech-banner .kh-banner-butterfly{background-position:right center}body.home .kh-tech-banner .kh-tech-copy h2,body.home .kh-tech-banner .kh-tech-copy h3{font-size:20px!important;margin:0 0 8px!important}body.home .kh-tech-banner .kh-tech-copy p{font-size:14px;line-height:1.5;margin:0 0 8px}body.home .kh-tech-banner .kh-tech-links{margin-top:0!important}body.home .kh-tech-banner .kh-tech-links a{font-size:14px}body.home .kh-tech-banner .kh-tech-copy h3 a{color:#11145b!important;margin:0}@media(max-width:1150px) and (min-width:701px){body.home .kh-tech.kh-tech-banner{grid-template-columns:160px minmax(0,1fr) 140px!important}body.home .kh-tech-banner .kh-banner-laptop{width:160px;height:95px;background-size:627.23px 95px}body.home .kh-tech-banner .kh-banner-butterfly{width:140px;height:95px;background-size:627.23px 95px}}@media(max-width:700px){body.home .kh-tech.kh-tech-banner{grid-template-columns:1fr!important;padding:18px!important;gap:12px!important}body.home .kh-tech-banner .kh-banner-laptop{justify-self:center}body.home .kh-tech-banner .kh-banner-butterfly{display:none}body.home .kh-tech-banner .kh-tech-copy h3{font-size:20px!important}}<\/style>\n<section class=\"kh-tech kh-tech-banner\" id=\"technologie\" aria-labelledby=\"kh-tech-heading\">\n<div class=\"kh-banner-art kh-banner-laptop\" role=\"img\" aria-label=\"Notebook a zelen\u00e1 rastlina\"><\/div>\n<div class=\"kh-tech-copy\">\n<h3  id=\"kh-tech-heading\"><a href=\"https:\/\/kristianhulala.sk\/hu\/technologiak\/\">Technol\u00f3gi\u00e1k, amelyek megk\u00f6nny\u00edtik az \u00e9letemet<\/a><\/h3>\n<p>Tesztek, tippek, \u00f6tletek \u00e9s eszk\u00f6z\u00f6k, amelyeket nap mint nap haszn\u00e1lok \u2013 a sz\u00e1m\u00edt\u00f3g\u00e9pekt\u0151l a kamer\u00e1kig.<\/p>\n<div class=\"kh-tech-links\"><a href=\"https:\/\/kristianhulala.sk\/hu\/technologiak\/\">Tudjon meg t\u00f6bbet \u2192<\/a><\/div>\n<\/div>\n<div class=\"kh-banner-art kh-banner-butterfly\" aria-hidden=\"true\"><\/div>\n<\/section>\n<style>\/* KH homepage finishing pass: readability and touch targets *\/body.home #content :is(.kh-life,.kh-articles,.kh-tech) :is(h2,h3){font-family:Arial,sans-serif!important;font-weight:700!important;color:#11145b!important}body.home .kh-topic a,body.home .kh-article a,body.home .kh-tech-links>a{display:inline-flex;align-items:center;min-height:44px;padding:9px 4px;line-height:1.5;border-radius:6px;align-self:flex-start}body.home .kh-topic 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Mindennapi \u00e1pol\u00e1s, kezel\u00e9s, gy\u00f3gy\u00e1szati seg\u00e9deszk\u00f6z\u00f6k \u00e9s \u00e9let a pillang\u00f3sz\u00e1rny-betegs\u00e9ggel.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/kristianhulala.sk\/hu\/\" \/>\n<meta property=\"og:locale\" content=\"hu_HU\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Kristi\u00e1n \u00e9s az \u00e9let Epidermolysis Bullos\u00e1val\" \/>\n<meta property=\"og:description\" content=\"Kristi\u00e1n vagyok, \u00e9s az \u00e9letem sz\u00fclet\u00e9sem \u00f3ta m\u00e1s, 35 \u00e9ves vagyok, \u00e9s a ritka b\u0151rbetegs\u00e9ggel, az Epidermolysis Bullos\u00e1val \u00e9lek\" \/>\n<meta property=\"og:url\" content=\"https:\/\/kristianhulala.sk\/hu\/\" \/>\n<meta property=\"og:site_name\" content=\"Kristi\u00e1n Hulala\" \/>\n<meta property=\"article:modified_time\" content=\"2026-10-22T07:06:33+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2021\/05\/butterfly-on-hands1.jpg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<meta name=\"twitter:title\" content=\"Kristi\u00e1n \u00e9s az \u00e9let Epidermolysis Bullos\u00e1val\" \/>\n<meta name=\"twitter:description\" content=\"Kristi\u00e1n vagyok, \u00e9s az \u00e9letem sz\u00fclet\u00e9sem \u00f3ta m\u00e1s, 35 \u00e9ves vagyok, \u00e9s a ritka b\u0151rbetegs\u00e9ggel, az Epidermolysis Bullos\u00e1val \u00e9lek\" \/>\n<meta name=\"twitter:image\" content=\"https:\/\/kristianhulala.sk\/wp-content\/uploads\/2021\/05\/butterfly-on-hands1.jpg\" \/>\n<meta name=\"twitter:label1\" content=\"Becs\u00fclt olvas\u00e1si id\u0151\" \/>\n\t<meta name=\"twitter:data1\" content=\"3 perc\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/kristianhulala.sk\\\/hu\\\/\",\"url\":\"https:\\\/\\\/kristianhulala.sk\\\/hu\\\/\",\"name\":\"\u00c9let Epidermolysis Bullos\u00e1val \u2013 a szem\u00e9lyes t\u00f6rt\u00e9netem\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/kristianhulala.sk\\\/hu\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/kristianhulala.sk\\\/hu\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/kristianhulala.sk\\\/hu\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/kristianhulala.sk\\\/wp-content\\\/uploads\\\/2026\\\/10\\\/header.png\",\"datePublished\":\"2026-03-18T15:34:03+00:00\",\"dateModified\":\"2026-10-22T07:06:33+00:00\",\"description\":\"A szem\u00e9lyes t\u00f6rt\u00e9netem az Epidermolysis Bullos\u00e1val val\u00f3 egy\u00fctt\u00e9l\u00e9sr\u0151l. 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