{"id":3148,"date":"2026-03-19T11:10:56","date_gmt":"2026-03-19T11:10:56","guid":{"rendered":"https:\/\/kristianhulala.sk\/hogyan-nez-ki-egy-atlagos-napom-eb-vel\/"},"modified":"2026-03-28T15:10:16","modified_gmt":"2026-03-28T15:10:16","slug":"hogyan-nez-ki-egy-atlagos-napom-eb-vel","status":"publish","type":"page","link":"https:\/\/kristianhulala.sk\/hu\/hogyan-nez-ki-egy-atlagos-napom-eb-vel\/","title":{"rendered":"Hogyan n\u00e9z ki egy \u00e1tlagos napom EB-vel"},"content":{"rendered":"

Az \u00e9n \u00e1tlagos napom Epidermolysis Bullos\u00e1val (EB)<\/h1><\/div>

Ez a cikk le\u00edrja \u00e1tlagos napomat Epidermolysis Bullos\u00e1val \u00e9s mindennapi \u00e9letemet ezzel a betegs\u00e9ggel.<\/p>\n

Az Epidermolysis Bullosa (EB) betegs\u00e9ggel t\u00f6lt\u00f6tt minden napnak megvan a maga ritmusa. A nap nagy r\u00e9sz\u00e9t a sebkezel\u00e9s \u00e9s a pihen\u00e9s teszi ki, de igyekszem beilleszteni a mindennapjaimba olyan szok\u00e1sos tev\u00e9kenys\u00e9geket is, amelyek \u00f6r\u00f6met okoznak. <\/p>\n

Reggel a kezel\u00e9s ut\u00e1n<\/h3>\n

A reggeli kezel\u00e9s ut\u00e1n beh\u00edvom a kuty\u00e1imat, \u00e9s le\u00fcl\u00f6k a sz\u00e1m\u00edt\u00f3g\u00e9phez. A fiatalabb kutya reggelt\u0151l tele van energi\u00e1val, j\u00e1t\u00e9kokkal rohang\u00e1l, \u00e9s j\u00e1tszani akar. Az id\u0151sebb kutya nyugodtabb, le\u00fcl mell\u00e9m \u00e9s pihen. <\/p>\n

Anya elk\u00e9sz\u00edti a reggelimet \u00e9s odahozza a sz\u00e1m\u00edt\u00f3g\u00e9phez. Ev\u00e9s k\u00f6zben olvasom a technol\u00f3giai vil\u00e1gb\u00f3l sz\u00e1rmaz\u00f3 h\u00edreket \u00e9s k\u00fcl\u00f6nf\u00e9le \u00e9rdekess\u00e9geket. <\/p>\n

Pihen\u00e9s \u00e9s id\u0151 a csal\u00e1ddal<\/h3>\n

Reggeli ut\u00e1n gyakran lefekszem egy kis id\u0151re 20-30 percre \u00e9s simogatom a kuty\u00e1kat. Azt\u00e1n \u00fajra le\u00fcl\u00f6k a sz\u00e1m\u00edt\u00f3g\u00e9phez. <\/p>\n

Az eb\u00e9det anya 11:30 k\u00f6r\u00fcl kezdi el k\u00e9sz\u00edteni. Maga az ev\u00e9s k\u00f6r\u00fclbel\u00fcl f\u00e9l \u00f3r\u00e1t\u00f3l egy \u00f3r\u00e1ig tart. Eb\u00e9d ut\u00e1n beveszem a vitaminokat \u00e9s gy\u00f3gyszereket, amelyeket anya m\u00e1r reggel elk\u00e9sz\u00edt. <\/p>\n

Ezut\u00e1n elmegyek pihenni az \u00e1gyba. Anyuk\u00e1m betakar egy takar\u00f3val, \u00e9s a kuty\u00e1k mellettem vannak. Pihenek, vagy a telefonomon vagy tabletemen olvasok k\u00fcl\u00f6nb\u00f6z\u0151 \u00e9rdekess\u00e9geket. <\/p>\n

D\u00e9lut\u00e1ni rutin<\/h3>\n

14:45-kor megiszom az Ensure Plus Advance-t. Ut\u00e1na vagy le\u00fcl\u00f6k a sz\u00e1m\u00edt\u00f3g\u00e9phez, vagy m\u00e9g egy kicsit pihenek. <\/p>\n

N\u00e9ha elmegyek a konyh\u00e1ba anyuk\u00e1mhoz. H\u00e9tv\u00e9g\u00e9n, amikor apuk\u00e1m is otthon van, egy\u00fctt t\u00f6ltj\u00fck az id\u0151t \u00e9s besz\u00e9lget\u00fcnk. <\/p>\n

Kuty\u00e1k gondoz\u00e1sa \u00e9s este<\/h3>\n

16:30-kor anya megetet\u0456 a kuty\u00e1kat. Amikor befejezik az ev\u00e9st, kekszet \u00e9s fogkef\u00e9t adok nekik. <\/p>\n

17:00-kor beveszem az esti tablett\u00e1t, \u00e9s anya elk\u00e9sz\u00edti a vacsor\u00e1mat. Lassan vacsor\u00e1zom a sz\u00e1m\u00edt\u00f3g\u00e9pn\u00e9l, hogy ne fusson be. <\/p>\n

18:30 k\u00f6r\u00fcl minden este megn\u00e9zek egy filmet. Ez az az id\u0151, amire mindig v\u00e1rok. <\/p>\n

Este \u00e9s alv\u00e1s<\/h3>\n

20:45-kor megiszom a m\u00e1sodik Ensure Plus Advance-t, amit lassan, 15-20 perc alatt fogyasztok el, hogy ne terheljem meg a gyomromat.<\/p>\n

K\u00f6r\u00fclbel\u00fcl 21:20-kor fekszem le. Anya ellen\u0151rzi a sebeimet \u00e9s k\u00f6t\u00e9seimet, seg\u00edt felvenni a pizsam\u00e1t \u00e9s betakar. <\/p>\n

Az \u00e1gyban m\u00e9g egy kicsit gondolkodom, azt\u00e1n elalszom.<\/p>\n

Alv\u00e1s \u00e9s f\u00e1jdalom<\/h3>\n

Az alv\u00e1som v\u00e1ltoz\u00f3. N\u00e9ha j\u00f3l alszom, de vannak olyan \u00e9jszak\u00e1k is, amikor f\u00e1jnak a sebeim, leggyakrabban a l\u00e1bamon. <\/p>\n

Ilyenkor nem tal\u00e1lok k\u00e9nyelmes poz\u00edci\u00f3t, \u00e9s az elalv\u00e1s nehezebb.<\/p>\n

Minden nap EB-vel m\u00e1s, de \u00e1tlagos napom Epidermolysis Bullos\u00e1val<\/strong> rendelkezik saj\u00e1t ritmussal.<\/p>\n

A sebkezel\u00e9sr\u0151l b\u0151vebben az Hogyan kezelem a sebeket Epidermolysis Bullosa eset\u00e9n<\/a> oldalon olvashat.<\/p>\n<\/div><\/div><\/div><\/div><\/div>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"footnotes":""},"class_list":["post-3148","page","type-page","status-publish","hentry"],"yoast_head":"\nEgy \u00e1tlagos nap Epidermolysis Bullos\u00e1val \u2013 hogyan n\u00e9z ki az \u00e9letem (EB)<\/title>\n<meta name=\"description\" content=\"Hogyan n\u00e9z ki egy \u00e1tlagos nap Epidermolysis Bullos\u00e1val? 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