Hi, my name is Kristián 👋
I live with Epidermolysis Bullosa – a condition that affects my everyday life. Despite the challenges, I try to live life to the fullest and share my experiences, insights and the technologies that make my life easier.
My Life and Health
My life with EB, daily care, health, and everything that helps me.
I never give up.
I look for solutions,
not excuses.– Kristián Hulala
Living with EB
Reality, challenges, and experiences from daily life.
Life as a Student with EB
School, learning, aids, and my experiences.
How I Treat Wounds with EB
Procedures, aids, and tips that help me.
Medical Supplies
Supplies I use for daily care.
Medications and Vitamins
What I take and what helps me with EB.
What My Typical Day Looks Like
Daily care and things that bring me joy.